On Doing “Nothing”

The other day I was visiting my Grannie at the care home where she lives. It’s a residential home about 10-15 minutes drive from us which has a newly constructed annexe providing nursing care primarily for those with dementia. Grannie, thankfully, hasn’t suffered from mental degeneration aside from short-term memory loss and occasional disorientation, and at almost 95 years old she still completes the Guardian quick crossword every day. And usually a few more out of her puzzle book. She is visited by either Mum, Dad or me every day.

The other day while we were sat together in the lounge, two care assistants came in to help a male resident to the toilet. We have all noticed a distressing decline in this man recently – while never particularly animated, he used to greet me with a wink, and would share toffees with another resident whom he sits next to in the lounge and eats with in the dining room. But lately he has seemed increasingly depressed; he appears more confused and is more agitated when asked to do something. When his son comes to visit, my heart breaks for them both as they exchange pleasantries and then are left unsure of what else to say.

As this man, R, was helped to the toilet, one c/a asked him how his day had been. He replied, “Not too bad,” before adding with a slight smile, “It could have been better.” The c/a smiled and said, “Oh, but that’s what we all say, isn’t it?” Then she looked at me and laughed, “I’d love to swap a day – sit and do nothing all day.” I smiled back because there was no malice in her tone, just exhaustion. But I remain acutely aware that her conception of “doing nothing” is very different to R’s reality.

For most of us, a day doing “nothing” means a day in we have a choice of what to do. And even if we consciously opt to do “nothing”, that might consist of lying on the settee watching TV, or a film, or curling up with a book, or playing excessive amounts of Scrabulous, or going for a walk, or spending some quiet time with friends or family. It feels like “nothing” in comparison to our usual routine, but we’re almost always doing “something”. For too many – in fact probably for the majority – of care home residents, “nothing” really means “Nothing”. It means sitting in a chair alternately dozing or staring into space; perhaps exchanging a few words with someone passing by; or staring blankly at a TV screen that blares incomprehensible nonsense day in and day out, and which is always switched on to provide some semblance of activity, attempting to disguise the fact that the daily lives of so many of these people are virtually empty.

 The home owner recently employed an activities coordinator, but the fact that she is contracted for no more than ten hours a week belies the primacy of profit underpinning the whole enterprise. As it happens, this makes no real difference to my Grannie who exists quite contentedly in her own company (though I have no doubt she would decline rapidly were it not for our daily visits) and doesn’t hold much truck with organised activities (and it’s crucial that individual choices and personalities be respected when it comes to activities, rather than assuming that all old people enjoy bingo, or that simply because the coordinator is there, everyone will automatically want to join in with what’s offered). But for other residents the activities are a real high point of the week and they will continue to talk about them for days afterwards.

Care homes differ markedly in the amount and variation of activities they offer to their residents (and this is clearly reflected in their prices), but all of them could and should offer more. Mental, social and - where possible – physical stimulation is absolutely essential if care homes are to provide an environment in which residents are encouraged to thrive (and that will be interpreted differently for each individual) rather than just expected to decline.

Dementia in the News

The Alzheimer’s Society has published a report today called Home From Home looking at the experience of dementia sufferers in residential care. The report calls for mandatory dementia training for all care home staff (yes, please) and finds that:

  • More than half of people with a relative in residential care say there is not enough for the person with dementia to do each day
  • Over one in four family carers feel they do not receive enough information about the care and treatment of the person they care for
  • Care home staff say providing care that improves the quality of life of residents with dementia is the top factor in job satisfaction

There’s so much to be done, but it’s heartening that the report’s release made the national headlines today.

Lunch

There was an article in our local paper last Friday about a Tuesday lunch club for older people that has been running in my town for 28 years but may be forced to close at Christmas due to a lack of volunteers. The club provides a hot two-course homecooked meal and a chance to socialise – for some of the members this is the only chance they get to meet other people all week. Such services are vital – there’s no doubt that without them more elderly people would enter residential care, arguably before it is absolutely necessary.

So, rather than restricting my dissatisfaction to grumbling into cyberspace, I marched up to the club this lunchtime to see if I could be of any help. I think they were a bit surprised to see me (pleased, though), and what they’re really looking for is a cook. I like to cook but still consider myself very much a learner and by no means equipped to prepare lunch for dozens (the terror!). They did say, however, that they need people to serve the lunch and clear up afterwards, which is more in line with my capabilities; the organiser wasn’t there today, so I left my details and hope that something comes of it. As well as contributing to my community, I’m really interested to be involved with older people who remain living independently (such as my wonder of an 87 year-old Grandma); I wonder how the experience of ageing differs for people depending on the environment in which they live.

Frustration

I don’t consider myself a control freak. I’m a renowned Planner, but equally a lover of spontaneity and serendipity, and I rarely get stressed if something doesn’t work out exactly the way I envisaged (and things rarely do). Over the last few years I have relaxed significantly in my approach to life. Having said all that, however, I do get frustrated when I feel my efforts are not being rewarded, or when I find myself reliant on other people or circumstances to ensure that my efforts come to fruition.

This is a convoluted way of complaining that I don’t have any work at the moment and it’s annoying me. The advantages of working through an agency are the flexibility and self-designed schedule (and the extra pay at the weekend), all of which work well for me given that I can’t commit to a job beyond February (when I’m going to India! Alone! For three months! Watch this space.). The obvious disadvantage is that when things go quiet (as, it appears, in the run up to Christmas when people stop skiving in order to earn more money) I don’t have any work to do. This leaves me frustrated, poor, and missing my old friends! I hope something comes up soon.